Friday, November 8, 2013

Serenity: 18 weeks (Corrected age: 2 weeks 2 days)

Serenity's doctor wanted to have another meeting with us today. He wanted to discuss from A to Z what is going on with her right now.

Most of the things we knew--some things were new information.

The fluid in Serenity's chest has tested positive for one strain of Staph. The good news (which I believe I have already updated everyone on) is that the fluid seems to be clearing up with the help of medicine. In fact, they have taken the chest tube out as of today, and will continue to monitor through x-rays every day to make sure the fluid doesn't re-accumulate. Her blood, however, tested positive for a different strain of Staph. So the idea of it being a contaminated sample is less likely, but is still uncertain.

Next, is the issue of Serenity's gut. Her intestines are just one giant mess. There doesn't appear to be much we can do for her until we are able to take her to surgery and have them look at everything--and pray they will be able to fix everything.

Lastly, we were given some news that somehow didn't make it to us before. On one of Serenity's brain scans, they found cysts where the previous hemorrhages had been. This is called, Periventricular Leukomalacia (or, PVL for short). Where the cysts are, that means the brain is unable to grow in those areas. There is no answer to how little or how much she will be affected by this until she is older. However, we have to be informed that Cerebral Palsy is a possibility. Most likely she wouldn't be diagnosed with Cerebral Palsy until around age 2 if that were the case, as it can be difficult to determine at earlier ages.

That all being said... Serenity just has a lot going on. She is still a critical baby.

Most important to pray for: weight gain, infection, and gut.

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